“It would be easier if God would say, ‘You are I are going to do this hard thing together, but it’s gonna be over in four months.’ … We could all do that, right. We could all look at that end point and know, ‘I can make it to that end.’ The harder part is when God says, ‘We’re just gonna do a hard thing together for an undisclosed amount of time.’” - Andrea Harper, MD

Andrea Harper, MD:

Myasthenia Gravis & a Doctor’s View of Rare Disease

In this video conversation, my good friend, Dr. Andrea Harper, and I talk about living with rare disease. In 2018, we both come face-to-face with rare disease in dramatic fashion.

Andrea is one of those rare doctors who doesn’t talk like a doctor, she talks like a friend. She explains Myasthenia Gravis and how God prepared her for such a rare diagnosis. She explains why some doctors seem out of touch with your medical care. And she shares where real hope comes from.

We chat about:

• who to take with you to a doctor’s appointment

• how to interview a doctor to join your team

• how “work” is effected by rare disease

• what it’s like to be a medical professional with a rare disease

I’ve got 17 Quick Resources to encourage you.

These articles and podcasts will take you from discouraged to hopeful in 0-30 minutes (depending on what you pick).

I’ve been where you are. These resources will help you find hope, right now.